When you get diagnosed with a new condition, finding support can make a big difference in your overall health. With diseases that are more rare, such as dupuytren's contracture and ledderhose disease, you may learn about new treatment therapies, and coping skills by meeting with a support group. It can be very stressful when you are newly diagnosed, and finding others that are dealing with the same disease or something similar can be very affirming. If you have recently been diagnosed with a new condition, ask your doctor about a support group in your area to help you manage your disease.
Why Support Groups Work
People like to know that they are not alone when facing a new disease. For example, talking about peyronies disease, which can cause a penis to bend to the side or up, isn't exactly dinner conversation. While this condition can resolve itself in a year or two, even without treatment, it can be painful and embarrassing. A support group with other men who are dealing with the same problem can help normalize the issue, and allow group members to talk about how the condition is affecting their lives. Support groups work because no longer feel that they have to deal with a problem on their own.
Education Within a Support Group
When dealing with a new health problem, most people try to learn as much as they can about their diagnosis. With the abundance of information available with a quick internet search, the amount of information one receives can be overwhelming. A support group will help educate you on what you can expect with your diagnosis, ways to handle the problems that come up, and a safe place to talk about how the disease is affecting your life. A support group that is well facilitated by a leader will be able to give you the information you need, or at least direct you to where the information can be found in regards to your condition.
Information About Treatment Providers
Within a support group for a particular disease, like Dupuytren's Disease Support Group, it is likely that most people are in some form of treatment. If you are newly diagnosed, you may have questions regarding treatment, area providers, and methods of treatment that have worked best for participants. While every person is different, you may get some great referral information from members of the group who have had success with treatment and love a particular provider.